I know I have not written a blog post since before we left for China, and that is because life has been a bit of a FLASH since we left. We chronicled all the details and travels in our FB travel group. So for those of you that are on FB, and were not already seeing our posts and want to catch up- feel free to private message me and I would be happy to add you to the closed group. I will be honest, this Mama does not have the time to write eloquent blog posts now that we are a family of six, and I will be returning to my full-time job in another week. :{ But I did want to at least make one more blog post to sort of give you the cliff notes on happenings since we have been home. Above is our first family photo when we arrived at the airport Dec. 1, 2017.π
It definitely was the right decision to take Jace along with us to China to meet his little brother for the first time. The boys have a very special bond, and it just melts my heart to see that protective and sensitive side of Jace. Ming is such a precious little boy. He really has adjusted quite well, and is attaching to Doug and I beautifully. He still is learning to accept the love of his doding sisters, but that will come. As any international adoption, when you return to the states you have a plethora of comprehensive medical appointments to test for EVERYTHING, establish baselines, and essentially catch them up developmentally. We have been doing all that in addition to getting his Thalassemia management/treatment started at our local children's hospital.
Unfortunately we got off to a bit of a rocky start with Ming's transfusions. His very first transfusion with us here in the US, he suffered an anaphylactic reaction to the blood he received. π±π This reaction gained him, his first hospital admission!π© Oh my poor boy! Why did this happen to you? I cannot even write all the complex emotions I felt, and heightened discussions that were had between me and Mingβs medical team surrounding this situation and the future of his treatment.
Then only a week later, as if this wasn't enough trauma for our little guy, he was lucky enough to catch one of the worst viruses of this cold and flu season. He was unable to fight it on his own and went into respiratory failure, and ANOTHER hospital stay. This time in the PICU! π
Part of the research phase before committing to proceed to adopt Ming, Doug and I researched his condition, it's treatment, what we could provide and the resources we had accessible to us, and collaborated with other families of children living with Thal. We were advised and planned to go to one of 7 leading Thalassemia centers in the US this Summer to have Ming evaluated and make recommendations for our local hematology team to follow. Given Ming's volatile medical start in the first 2 months of him being home, we now have an appointment in Atlanta, GA on Feb. 1st. for his evaluation. We can't wait! Ming needs the expertise of this center to establish a protocol/plan for his management of his condition. The decisions that are made NOW and monthly will affect the quality and longevity of his life.
I can't tell you how many individuals have asked me upon meeting us (usually in the hospital or a healthcare worker), "Did you know he had this condition when you sought out to adopt him?" That question sort of stirs up a variety of emotions and even memories. I am quick to respond an assuring, "Yes we did, and we accept the full responsibility of his care whatever that may be in his future. He is our son." A lot of you probably don't even know how our path with our family changed some 6yrs. ago. Doug and I had a beautiful little girl, born with Trisomy 18. A chromosomal abnormality that is "not compatible with life." We were blessed to have been able to carry her to full term, give birth to her ALIVE, and even take her home for 2 and a half months of her LIFE. She required 24 hr care. She had to be fed through a tube in her nose, suctioned. She was on O2 and hooked up to heart and O2 monitors beeping at all times of the day/night. When the NICU team sent us home, we were sent home with a red DNRCC card that I was to show the ambulance or any Dr when they arrive at my home or hospital because she had passed. I still have this haunting piece of paper that was so confusing and contradictory to my every fiber of being. I couldn't understand that there was No-One that could help her. No-One that would take the chance in surgery at repairing her very broken little heart. I felt as though I had no voice. EVERYONE and I mean EVERYONE medical that I came in contact with or sought out for another opinion told me the best thing was to put it in God's hands because they would do more harm and shorten her unknown amount of time by trying to intervene medically. So Palliative Care was involved with us and we just tried to live every second, hour and day as if it might be our last. This holiday season was very special to Doug and me to have everyone home and well again. You see, Ayla died in my arms, at home on December 30, 2011. When Ming had to go through some of the medical interventions that he did over the past 2 hospital admissions, there were quite a few triggers if you will, that reminded Doug and I of our time with Ayla. You will have to forgive me for my digression- I know that medically, Ming is very different than our Ayla was. You see I am not the least bit bitter about our time with Ayla. It was the most beautiful and life changing time/season in our life, and for that I am thankful. It is because of her that we chose to look into adopting internationally, and children with special needs. I believe that the Lord has blessed us with these beautiful children because of our obedience to Him for carrying her and giving her life dignity and a chance for a miracle. While I maybe felt like I had no voice with her medical care, and she was "not compatible with life." In our short time with her she taught me so much about having HOPE, and by believing in HOPE- our FAITH grew. It's that FAITH that has driven me, and He has blessed us beyond measure! So yes, we CHOSE Ming, and would a 100x over! We accept him as he is. He is not broken. He is just perfect! Perfectly made as God intended him to be. We love him and will care for him in sickness and in health just as all of our children. We have been groomed for this, and feel honored that the Lord has entrusted Doug and me with his care. We are the lucky ones being blessed by getting a front row seat to see all the great things he is going to do and the people he is going to touch in his lifetime.
So thank you Village for being a part of Ming's story. We would not have this precious little boy HOME with us if it wasn't for each one of you and your acts of kindness and graciousness. Thank you, to all the wonderful grant organizations that believed in our family and wanted to help us bring Ming home! Families like ours, need organizations, friends and family such as each of you to gather around us and help us tackle the overwhelming financial burden and emotional rollercoaster that adoption is. You have made a difference in THIS child's life, and I hope you have in some way been touched by your part and the impact it has had on changing the course of his life. Ming now has HOPE, and a chance at life. His story is really still so young and new. Sure times may be tough, and it is a steep learning curve right now. But the Lord doesn't call us to simple and easy things. I believe that the greater the risk, the greater the potential reward. The hope, love, and healing that adoption can bring to ALL involved is worth the risk. Love is always worth the risk! Our children are worth the risk. Love may not be able to change everything, but it is the strongest human desire that gives HOPE. And a life with HOPE and FAITH has PURPOSE, and is worth living for.